Data Sharing Governance in Research

Three papers on data sharing agreements and research data management, consolidated from files with significant filename-content mismatches.

Papers Merged

1. A Focus Groups Study on Data Sharing and Research Data Management — Devan Ray Donaldson, Joshua Wolfgang Koepke — Nature Scientific Data

   • Source file: FASTFUSIONNET - NEW STATE-OF-THE-ART FOR DAWNBENCH SQUAD.txt (mismatch)
   • Scientists’ perceptions of data repositories and genomic dataset sharing

2. The Benefits of Data Sharing and Ensuring Open Sources of Systematic Review Data — Sze Lin Yoong et al. (5 authors, Australian institutions) — Journal of Public Health, Vol. 44, No. 4, 2022

   • Source file: POIReviewQA - A Semantically Enriched POI Retrieval...txt (mismatch)
   • Advantages of sharing systematic review data for reproducibility

3. User-Focused Data Sharing Agreements: A Foundation for the Genomic Future — Carolyn Petersen (Mayo Clinic) — JAMIA Open, 2(4), 2019

   • Source file: User-focused data sharing agreements...txt (correct title)
   • Design of agreements that promote trust and participation in genomic data sharing

Common Themes

• Data sharing agreements need clear user-facing language about what individuals are consenting to
• Researchers generally support data sharing but face institutional barriers
• Open data practices improve systematic review quality and reproducibility
• Genomic data sharing requires special attention to privacy and consent frameworks

Connection to Vault

Connects to the broader data governance work in Federated Data Governance and the organizational data management principles in Systems Thinking KM.